educate. advocate. support

children living in families with ALS/mnd
together we can
Your donation allows children to access language and cultural appropriate supports, films, and books about ALS/MND.
educate. advocate. support
Your donation allows children to access language and cultural appropriate supports, films, and books about ALS/MND.
Having a film or book in your own language opens the door for understanding - across illnesses.The foundation works with organizations to develop films and materials with no language and translates written books accessible across cultures
Working with other non-profits to create and build out youth focused programming - creating a connected world across organizations, translating materials and connecting youth to resources in their area/country.
Caregiving is complicated and stressful, made more so by not having the right tools. We work with organizations to provide families with new or gently used devices and tools.
Your support and contributions will enable us to meet our goals and improve conditions. Your generous donation will fund our mission.
In order to raise awareness for ALS, we are working with Big Grin studios to create an animated short film, freely available on various media channels to reach a broader, international audience. The main character is a robot, Luka. Luka is diagnosed with ALS and the film shows his journey through and after diagnosis, including the impact on others. It’s a silent film, with beautiful universal music, making it accessible for an international audience.
The film will be made possible by different worldwide fundraiser initiatives to allow professional animation studio Big Grin Productions to visualise Luka’s journey.
In ALS, amyotrophic lateral sclerosis,
nerve cells break down, which reduces functionality in the muscles they supply. Medication and therapy can slow ALS and reduce discomfort, but there’s no cure.
The average incidence rate of ALS worldwide is about one in 50,000 people per year that equates to about 5,760 to 6,400 new diagnoses per year. Counting relatives, Luka could help millions of children worldwide.
At this moment ALS is 100% incurable. We are fighting for an ALS-free generation.
16 year old young caregiver
Engaging young caregivers - The ALS Association is a long time supporter of the YCare program: skills, education and support for young caregivers.
Sign up to receive our newsletter and emails about the foundation work!
Copyright © 2022 Luka Youth Foundation Inc. - All Rights Reserved
Luka Youth Foundation is a 501c3 Milwaukee nonprofit organization,
Federal Tax ID# 88-2773713